- My child has been diagnosed with LCA. What do we need to do to participate in Project 3000?
- Will insurance cover genetic testing for LCA?
- I have learned that my insurance company will not pay for genetic testing. Now what?
- Our child has been diagnosed with LCA. Why are we being asked for “parental” samples? Neither of us is affected.
- What is the protocol for submitting parental samples?
- What can I personally do to move research forward?
Articles of Interest:
- Leber congenital amaurosis: Clinical correlations with genotypes, gene therapy trials update, and future directions.
- Visual Acuity in Patients with Leber's Congenital Amaurosis and Early Childhood-Onset Retinitis Pigmentosa